The Impact of Caring for Children with Special Needs on Maternal Subjective Well-being: A Bibliometric Analysis
DOI:
https://doi.org/10.63230/jolabis.2.1.214Keywords:
Children, Literature Review, Maternal, Self-EfficacyAbstract
Objective: The literature on Maternal Subjective Well-being (MSW) has grown rapidly over the past two decades. MSW is a multidimensional construct encompassing subjective evaluations of mothers’ lives, including overall life satisfaction, happiness, and emotional well-being. Method: A systematic literature review was conducted using PubMed, Scopus, and Google Scholar databases to identify English-language articles published between 2013 and 2023 using the keywords mother, subjective well-being, and special needs children, yielding 2,200 records, of which 8 met the inclusion criteria and were subsequently analyzed using the PRISMA framework and thematic synthesis approach. Results: The review identified eight eligible studies and found that maternal subjective well-being is influenced by both internal factors (self-efficacy, hope, positive perceptions, and resilience) and external factors (social support, family functioning, and partner relationships). The findings highlight that strengthening psychological resources and social support systems may play a key role in improving the well-being of mothers caring for children with special needs. Novelty: The review highlights resilience as a key protective factor that can mitigate the negative effects of parenting stress on maternal subjective well-being and quality of life among mothers of children with disabilities. A notable research gap is the limited understanding of how protective factors, particularly resilience and benefit finding, can be developed and activated to support positive maternal adaptation to caregiving demands.
References
Abdelaziz, E. M., Alsadaan, N., Alqahtani, M., Elsharkawy, N. B., Ouda, M. M. A., Ramadan, O. M. E., ... & Shokre, E. S. (2024). Effectiveness of cognitive behavioral therapy (CBT) on psychological distress among mothers of children with autism spectrum disorder: the role of problem-solving appraisal. Behavioral Sciences, 14(1), 46. https://doi.org/10.3390/bs14010046
Agrawal, S., Oza, P., Kakkar, R., Tanwar, S., Jetani, V., Undhad, J., & Singh, A. (2024). Analysis and recommendation system-based on PRISMA checklist to write systematic review. Assessing Writing, 61(2024), 100866. https://doi.org/10.1016/j.asw.2024.100866
Andayani, S. A., Pudjibudojo, J. K., & Tjahjono, E. (2021). External and internal factors affecting subjective well being parents of children with special needs. In Proceedings of the International Conference on Psychological Studies (ICPSYCHE 2020) (Vol. 530, pp. 212–217). Atlantis Press. https://doi.org/10.2991/assehr.k.210423.040
Andrioni, F., Coman, C., Ghita, R. C., Bularca, M. C., Motoi, G., & Fulger, I. V. (2022). Anxiety, stress, and resilience strategies in parents of children with typical and late psychosocial development: comparative analysis. International journal of environmental research and public health, 19(4), 2161. https://doi.org/10.3390/ijerph19042161
Ayoola, A. A., Adeoye, O. F., & Joy, A. (2025). Maternal mental health and parenting children with disabilities: A systematic review of psychological and social challenges. International Journal of Pharma Growth Research Review, 2(2), 16-27.
Barcaccia, B., Couyoumdjian, A., Di Consiglio, M., Papa, C., Cancellieri, U. G., & Cervin, M. (2023). Purpose in life as an asset for well-being and a protective factor against depression in adolescents. Frontiers in Psychology, 14, 1250279. https://doi.org/10.3389/fpsyg.2023.1250279
Bi, X. B., He, H. Z., Lin, H. Y., & Fan, X. Z. (2022). Influence of social support network and perceived social support on the subjective wellbeing of mothers of children with autism spectrum disorder. Frontiers in Psychology, 13, 835110. https://doi.org/10.3389/fpsyg.2022.835110
Baldwin, A., Capper, T., & Naughton, S. (2025). My ‘normal’isn't your normal... What is maternal wellbeing? A scoping review. Midwifery, 141, 104250. https://doi.org/10.1016/j.midw.2024.104250
Banha, F., Flores, A., & Coelho, L. S. (2022). Quantitizing qualitative data from semi-structured interviews: A methodological contribution in the context of public policy decision-making. Mathematics, 10(19), 3597. https://doi.org/10.3390/math10193597
Brekke, I., & Alecu, A. (2023). The health of mothers caring for a child with a disability: A longitudinal study. BMC Women's Health, 23(1), 639. https://doi.org/10.1186/s12905-023-02798-y
Candeias, A. A., Galindo, E., Reschke, K., Bidzan, M., & Stueck, M. (2024). The interplay of stress, health, and well-being: unraveling the psychological and physiological processes. Frontiers in Psychology, 15, 1471084. https://doi.org/10.3389/fpsyg.2024.1471084
Chen, C. Y. C., Byrne, E., & Vélez, T. (2022). A preliminary study of COVID-19-related stressors, parenting stress, and parental psychological well-being among parents of school-age children. Journal of Child and Family Studies, 31(6), 1558-1569. https://doi.org/10.1007/s10826-022-02321-1
Chigbu, U. E., Atiku, S. O., & Du Plessis, C. C. (2023). The science of literature reviews: Searching, identifying, selecting, and synthesising. Publications, 11(1), 2. https://doi.org/10.3390/publications11010002
Cummins, R. A. (2010). Subjective wellbeing, homeostatically protected mood and depression: A synthesis. Journal of Happiness Studies, 11(1), 1–17. https://doi.org/10.1007/s10902-009-9167-0
Davis, A. M., Telfer, N. A., Artis, J., Abubakare, O., Keller‐Bell, Y. D., Caruthers, C., ... & Pierce, N. P. (2024). Resilience and strengths in the Black autism community in the United States: A scoping review. Autism Research, 17(11), 2198-2222. https://doi.org/10.1002/aur.3243
Dempsey, L., Dowling, M., Larkin, P., & Murphy, K. (2016). Sensitive interviewing in qualitative research. Research in Nursing & Health, 39(6), 480–490. https://doi.org/10.1002/nur.21743
Dengel, A., Gehrlein, R., Fernes, D., Görlich, S., Maurer, J., Pham, H. H., ... & Eisermann, N. D. G. (2023). Qualitative research methods for large language models: Conducting semi-structured interviews with ChatGPT and BARD on computer science education. Informatics, 10(4), 78. https://doi.org/10.3390/informatics10040078
Dey, N. E. Y., & Amponsah, B. (2020). Sources of perceived social support on resilience amongst parents raising children with special needs in Ghana. Heliyon, 6(11), e05569. https://doi.org/10.1016/j.heliyon.2020.e05569
Dominic, E. D., Mahamed, M., Abdullah, Z., & Hashim, N. B. (2022). Preferred reporting items for a systematic review and meta-analysis (Prisma): The impact of COVID-19 on University reputation and comparative evaluation. Sciences, 12(8), 1629-1652. http://dx.doi.org/10.6007/IJARAFMS/v12-i3/14694
Estinfort, W., Huang, J. P., Au, H. K., Lin, C. L., Chen, Y. Y., Chao, H. J., ... & Chen, Y. H. (2022). Effects of prenatal subjective well-being on birth outcomes and child development: A longitudinal study. European Psychiatry, 65(1), e77. https://doi.org/10.1192/j.eurpsy.2022.2338
Fatima, I., & Suhail, K. (2019). Protective factors for subjective well-being in mothers of children with Down syndrome. Pakistan Journal of Psychological Research, 34(4), 797–814. https://doi.org/10.33824/PJPR.2019.34.4.36
Findling, Y., Barnoy, S., & Itzhaki, M. (2023). Burden of treatment, emotion work and parental burnout of mothers to children with or without special needs: A pilot study. Current Psychology, 42(22), 19273-19285. https://doi.org/10.1007/s12144-022-03074-2
Franklin, L., Theodore, K., Foulds, D., Cooper, M., Mallaghan, L., Wilshaw, P., ... & Lee, J. N. Y. (2022). “They don't think I can cope, because I have got a learning disability…”: Experiences of stigma in the lives of parents with learning disabilities. Journal of Applied Research in Intellectual Disabilities, 35(4), 935-947. https://doi.org/10.1111/jar.12934
Gloy, V., Speich, B., Griessbach, A., Taji Heravi, A., Schulz, A., Fabbro, T., ... & Briel, M. (2022). Scoping review and characteristics of publicly available checklists for assessing clinical trial feasibility. BMC Medical Research Methodology, 22(1), 142. https://doi.org/10.1186/s12874-022-01617-6
Goldan, J., Nusser, L., & Gebel, M. (2022). School-related subjective well-being of children with and without special educational needs in inclusive classrooms. Child Indicators Research, 15(4), 1313–1337. https://doi.org/10.1007/s12187-022-09914-8
Guo, C., & Li, X. (2025). Perceived family socioeconomic status and subjective well-being in Chinese youth and adolescents: The mediating roles of social support and resilience. Child Indicators Research, 18(5), 1957-1972. https://doi.org/10.1007/s12187-025-10243-9
Harrison, J. E., Weber, S., Jakob, R., & Chute, C. G. (2021). ICD-11: an international classification of diseases for the twenty-first century. BMC medical informatics and decision making, 21(Suppl 6), 206. https://doi.org/10.1186/s12911-021-01534-6
Hasanah, N., Mulyati, & Tarma. (2019). Hubungan parenting self-efficacy dengan subjective well-being pada ibu yang memiliki anak berkebutuhan khusus. JKKP (Jurnal Kesejahteraan Keluarga dan Pendidikan), 6(2), 89–97. https://doi.org/10.21009/jkkp.062.04
Herrmann, S. D., Willis, E. A., Ainsworth, B. E., Barreira, T. V., Hastert, M., Kracht, C. L., ... & Jacobs Jr, D. R. (2024). 2024 Adult Compendium of Physical Activities: A third update of the energy costs of human activities. Journal of Sport and Health Science, 13(1), 6-12. https://doi.org/10.1016/j.jshs.2023.10.010
Hsieh, Y.-L., & Lo, J.-L. (2013). Occupational experiences and subjective well-being of mothers of children with ASD in Taiwan. Occupational Therapy International, 20(1), 45–53. https://doi.org/10.1002/oti.1339
Huang, L., & Zhang, T. (2022). Perceived social support, psychological capital, and subjective well-being among college students in the context of online learning during the COVID-19 pandemic. The Asia-Pacific Education Researcher, 31(5), 563-574. https://doi.org/10.1007/s40299-021-00608-3
Kachroo, W. Q., Reshi, I. A., & War, M. I. (2023). Quality of life and psychological well-being among mothers having children with multiple disabilities. International Journal of Economic, Business, Accounting, Agriculture Management and Sharia Administration (IJEBAS), 3(1), 217-221. https://radjapublika.com/index.php/IJEBAS
Kemp, F., Hudson, M., Schröder, T., & Gale, C. (2026). Adapting compassionate mind training into guided self‐help for parents of autistic children. Psychology and Psychotherapy: Theory, Research and Practice. https://doi.org/10.1111/papt.70060
Kudo, H. (2024). Role and value of family in implementing Japanese elderly long-term care: Historical-societal and comparative perspectives. In T. Klenk, M. Noordegraaf, E. Notarnicola, & K. Vrangbæk (Eds.), Societal value of welfare politics, policies and services (pp. 213–233). Springer Nature Switzerland. https://doi.org/10.1007/978-3-031-70969-2_10
Lakhani, A., Ali, T. S., Ashraf, D., & Roy, D. K. (2025). Exploring informal social support experiences and coping strategies in families raising a child with an intellectual disability. The Family Journal, 33(1), 150-171. https://doi.org/10.1177/10664807241283045
Lintangesukmanjaya, R. T., Prahani, B. K., Dwikoranto, Alhusni, H. Z., & Kurtuluş, M. A. (2025). Technology integration for SDGs-oriented social science education: A bibliometric perspective. E3S Web of Conferences, 640, 02017. https://doi.org/10.1051/e3sconf/202564002017
Ma, M., Gao, R., Wang, Q., Qi, M., Pi, Y., & Wang, T. (2023). Family adaptability and cohesion and the subjective well-being of parents of children with disabilities: The mediating role of coping style and resilience. Current Psychology, 42(22), 19065-19075. https://doi.org/10.1007/s12144-022-03094-y
Martinez-Marti, M. L., Avia, M. D., & Hernandez-Lloreda, M. J. (2010). The effects of counting blessings on subjective well-being: A gratitude intervention in a Spanish sample. The Spanish Journal of Psychology, 13(2), 886–896. https://doi.org/10.1017/S1138741600002535
Milton, A. C., et al. (2023). Supporting children’s social connection and well-being in school-age care: Mixed methods evaluation of the connect, promote, and protect program. JMIR Pediatrics and Parenting, 6(1), e44928. https://doi.org/10.2196/44928
Molgora, S., Fenaroli, V., & Saita, E. (2020). The association between childbirth experience and mother’s parenting stress: The mediating role of anxiety and depressive symptoms. Women & Health, 60(3), 327–343. https://doi.org/10.1080/03630242.2019.1635563
Munn, Z., Peters, M. D. J., Stern, C., Tufanaru, C., McArthur, A., & Aromataris, E. (2018). Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach. BMC Medical Research Methodology, 18(1), 143. https://doi.org/10.1186/s12874-018-0611-x
Papadopoulos, D. (2021). Mothers’ experiences and challenges raising a child with autism spectrum disorder: A qualitative study. Brain Sciences, 11(3), 309. https://doi.org/10.3390/brainsci11030309
Pessin, V. Z., Yamane, L. H., & Siman, R. R. (2022). Smart bibliometrics: an integrated method of science mapping and bibliometric analysis. Scientometrics, 127(6), 3695-3718. https://doi.org/10.1007/s11192-022-04406-6
Sarason, I. G., Sarason, B. R., & Pierce, G. R. (1990). Social support: The search for theory. Journal of Social and Clinical Psychology, 9(1), 133–147. https://doi.org/10.1521/jscp.1990.9.1.133
Sarman, A., & Tuncay, S. (2024). Problems experienced by families of children with disabilities and nursing approaches. In The Palgrave Encyclopedia of disability (pp. 1-13). Cham: Springer Nature Switzerland. https://doi.org/10.1007/978-3-031-40858-8_69-1
Shenaar-Golan, V. (2017). Hope and subjective well-being among parents of children with special needs. Child & Family Social Work, 22(1), 306–316. https://doi.org/10.1111/cfs.12241
Smythe, T., Matos, M., Reis, J., Duttine, A., Ferrite, S., & Kuper, H. (2020). Mothers as facilitators for a parent group intervention for children with congenital Zika syndrome: Qualitative findings from a feasibility study in Brazil. PLoS ONE, 15(9), e0238850. https://doi.org/10.1371/journal.pone.0238850
Soldato, D., Arecco, L., Agostinetto, E., Franzoi, M. A., Mariamidze, E., Begijanashvili, S., ... & Lambertini, M. (2023). The future of breast cancer research in the survivorship field. Oncology and Therapy, 11(2), 199-229. https://doi.org/10.1007/s40487-023-00225-8
Staunton, E., Kehoe, C., & Sharkey, L. (2023). Families under pressure: Stress and quality of life in parents of children with an intellectual disability. Irish Journal of Psychological Medicine, 40(2), 238–246. https://doi.org/10.1017/ipm.2020.4
Sur, S., & Sarkar, J. R. (2025). Children with special needs (CWSN) with intellectual disability: A way to independent living. Swami Vivekananda University Press, 1(2), 154-166. https://doi.org/10.65525/SVUP.9788198800459.2025.154-166
Vladislav, E. O., Marc, G., Paica, C. I., & Pop, O. (2024). Family resilience in a social-ecological context–emotional difficulties and coping strategies. Frontiers in psychology, 15, 1421745. https://doi.org/10.3389/fpsyg.2024.1421745
Vo, M. T. H., & Fong, B. Y. F. (2025). Long-term care initiatives in southeast Asian countries with emerging ageing population and the sustainability of health and social care systems. In The handbook of public health in the Asia-Pacific (pp. 1-32). Singapore: Springer Nature Singapore.
Wang, H., Hu, X., & Han, Z. R. (2020). Parental stress, involvement, and family quality of life in mothers and fathers of children with autism spectrum disorder in mainland China: A dyadic analysis. Research in Developmental Disabilities, 107, 103791. https://doi.org/10.1016/j.ridd.2020.103791
Wei, G., McDonald, S., Kelly, M., Ballard, K. J., & Kumfor, F. (2026). Post-diagnostic care pathways in dementia: Experiences and needs of family carers and considerations for interventions. Dementia, 25(3), 596-617. https://doi.org/10.1177/14713012251337230
Wijayanti, D. (2015). Subjective well-being dan penerimaan diri ibu yang memiliki anak Down syndrome. Psikoborneo: Jurnal Ilmiah Psikologi, 3(2), 120–130. https://doi.org/10.30872/psikoborneo.v3i2.3774
Yamashita, A., Isumi, A., & Fujiwara, T. (2022). Online peer support and well-being of mothers and children: Systematic scoping review. Journal of epidemiology, 32(2), 61-68. https://doi.org/10.2188/jea.JE20200079
Yayla, İ. E., Turhan, F. S., Dombak, K., Makas, S., İskender, M., & Çelik, E. (2026). The mediating role of social support in the relationship between social isolation and life satisfaction in families with and without children with special needs. Critical Public Health, 36(1), 2662033. https://doi.org/10.1080/09581596.2026.2662033
Zhang, J., Wang, J., Liu, H., & Wu, C. (2023). Association of dementia comorbidities with caregivers’ physical, psychological, social, and financial burden. BMC geriatrics, 23(1), 60. https://doi.org/10.1186/s12877-023-03774-9
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